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Further Rb Resources For Families
This page contains links to external websites which we believe may be useful to you.

  Further Resources

         
United Kingdom
         
Canada
         
Australia
         
Brazil
         
France
         
Germany
         
Ghana
         
India
         
International
         Israel
         
Italy
         
Poland
         
United States
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Unite Kingdom
Childhood Eye Cancer Trust
The national support organisation for patients, families and survivors.  Also raises awareness and funds research.
CancerBACUP
An extensive information resource for families.
Cancer Help UK
The Cancer Research UK information resource for patients, survivors and their families.  Includes a searchable database of clinical trials
ClicSargent
Information, resources and support for children and their families.  Research into childhood cancer.
Look
The national federation of families with visually impaired children.  Provides information, support and advocacy for families of vision impaired children.
Royal National Institute for the Blind (RNIB)
The national resource for people with vision loss.
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Canada
Canadian Retinoblastoma Society
The national support organisation for patients, families and survivors.  Also raises awareness and funds research.
Retinoblastoma Solutions
Molecular genetics lab dedicated to retinoblastoma genetic testing and research.
Retinoblastoma.ca
A parent-maintained information resource website, with the goal of early detection.
Canadian Cancer Society
Extensive information and support resources.
Canadian National Institute for the Blind (RNIB)
The national resource for people with vision loss.
Candlelighters Childhood Cancer Foundation
A national support and advocacy resource for affected children and their families.  Candlelighters has local chapters across Canada.
National Cancer Institute
Research information and resources, including a searchable database of clinical trials from the Clinical Trials Group.  http://www.ctg.queensu.ca/
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Australia
Cancer Council of Australia
A national federation of community-based cancer organisations.  CCA’s  activities include research, education, and provision of treatment and support.
Blind Citizens of Australia
The national resource for people affected by vision loss.
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Brazil
TUCCA
The Brain Tumor Association for Children and Adolescents (TUCCA), is a Brazilian organization dedicated to improving treatment, quality of life, and the long-term outlook for young patients with brain and spinal cord tumours and retinoblastoma.
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France
Retinostop
A national organisation providing support for families and individuals affected by Rb, funding research and new diagnostic/treatment resources, and promoting awareness,
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Germany
Retinoblastom
A national organisation providing support for families and individuals affected by Rb, as well as funding for research and promoting awareness.
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Ghana
Kids with Eye Cancer Association (KWECA).
This organisation aims to promote awareness among the public and health professionals, and fund treatment resources at Korle-Bu Teaching Hospital in Accra.
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India
Sankara Nethralaya – the Temple of the Eye
Home of the Retinoblastoma treatment centre in Chennai, which is supported by Daisy’s Eye Cancer Fund.
L.V. Prasad Eye Institute
Retinoblastoma treatment centre in Hyderabad.
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International
International Association for Research on Cancer
A World Health Organisation program which works to coordinate and conduct research into the epidemiology, causes, prevention and treatment of cancer,
International Network of Cancer Treatment and Research
The INCTR is dedicated to improving cancer care in currently under-resourced countries around the world.  It focuses on more treatable cancers, and operates a Specialist Retinoblastoma research sub-committee.
International Society of Paediatric Oncology.
A professional organisation for members of the medical community who treat children with cancer.
International Union Against Cancer
The world's largest independent association of cancer-fighting organisations, UICC encourages responsible dialogue and collective action, provides information and advocacy and raises awareness of the global cancer burden.
My Child Matters
A childhood cancer initiative from the UICC’s World Cancer Campaign.
Vision2020 – the right to sight.
A World Health Organization initiative, aims to eliminate preventable blindness worldwide by the year 2020.
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Israel
EyeCan - Israel
Supporting awareness and research, this organisation is run by the Departments of Ophthalmology and Paediatric Haematology/
Oncology at Hadassah Hospital, Jerusalem.
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Italy
Associazione Italiana Genitori Di Bambini Affetti Da Retinoblastoma
An awareness organisation based at the main treatment centre in Siena.
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Poland
Antosia's Foundation Fundacja Antosia
A foundation established by the parents of a child with cancer in both eyes, offering financial and emotional support to Polish children and their families affected by Rb.
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United States
US State and Regional Retinoblastoma Family Groups
Parent run groups which organises social gatherings and support for affected families in a specific geographic area.
Retinoblastoma of Arizona (RBAZ)
Retinoblastoma of Florida (RBFL)
Retinoblastoma Midwest (RBMW)
Retinoblastoma of Minnesota (RBMN)
Retinoblastoma of New England (RBNE)
Retinoblastoma of Texas (RBTX)
Retinoblastoma International
Based in California, this is an awareness focused organisation which also funds retinoblastoma research.
Retinoblastoma.com
Informative website for affected families and individuals. Compiled by Dr David Abramson in New York.
American Association of Paediatric Ophthalmology and Strabismus
This is a professional association with information targeted mainly at the medical community.  However, the organisation has a useful searchable database of accredited ophthalmologists in the USA.
Candlelighters Childhood Cancer Foundation
A national support and advocacy resource for affected children and their families.  Candlelighters has local chapters across the USA.
National Cancer Institute
Extensive cancer information and resources, including a searchable database of clinical trials in North America.
Outlook – life beyond childhood cancer.
An information and support service for childhood cancer survivors and their families.
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American Cancer Society
A National support and information resource.
American Federation for the Blind
The national resource for people with vision loss.
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