The Global Eye.
Happy New Year, and welcome to the first DECF newsletter of 2008!
Sun, fun and baseball with a family trip to a Toronto Bluejays Game, and the Music of Hope with David M Bailey.
Finally, a special Farewell Tribute to Harry Willshaw, the father of retinoblastoma care at Birmingham Children's Hospital in England.
Clinical trials are an essential part of developing and validating therapies for any cancer. Due to its rarity, retinoblastoma poses a challenge for researchers. Helen Dimaras P.hD examines the Toronto Protocol, subject of the world's first inter-continental clinical trial, established to enable thorough assessment of this treatment which has demonstrated success in the management of advanced intra-ocular retinoblastoma.
The most common early sign of etinoblastoma can be easily recognised, but many children around the world face blindness and death due to delayed diagnosis. Join the efforts of this annual global awareness event, to help achieve life- and vision-saving early diagnosis and treatment for afffected children.
Meet 13-year-old Katy from England and 2-year-old Brady from Florida USA, whose parents' determination to prevent a life of total blindness led to treatment with the Toronto Protocol. Their stories of remarkable success bring hope for a bright future.
Orbital implants are used when an eye has been removed, to fill the space created by this surgery. Consultant paediatric ophthalmologist, Manoj Parulekar, answers your questions about this relatively undiscussed aspect of retinoblastoma care.
Our resident Certified Child Life Specialist, Morgan Livingstone, gives us an insight into the process of making an artificial eye - from the child's perspective, suggesting ways to help children cope with thie often unecessarily traumatic experience.
Find out how a simple eduation campagin in Honduras has had a significant impact on the numbers of children presenting to hospital with retinoblastoma spread outside the eye - a major killer situation in developing countries.
Find out why one mum thinks her son's doctor should be named a World Retinoblastoma Citizen, and how you can nominate others for this annual humanitarian award.
Make some tasty chocolate fruit or a 3d heart for the special person in your life, or test your spelling skills with the Valentine themed anagrams.
Your thoughts on the value of guidelines, child life and multi-lingual awareness resources.
Upcoming events in the global retinoblastoma community.
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