The Global Eye.
Catch up on news from DECF, and find out more about what's in this edition of our newsletter.
In June, families from across the United States gathered in rural Maine for a week of adventure at Camp Sunshine. Lori Padilla (Arizona), Lori Graham (Colorado) and Tammy Raulerson (Texas) look back at am amazing, enriching experience for the whole family.
International Congress of Ocular Oncology.
Researchers and medics came together in Siena at the end of June fo the scientific meeting of the International Society of Ocular Oncology. We review the event's focus on retinoblastoma.
Guidelines are vital to achieving equality of care for children with retinoblastoma. The Canadian Retinoblastoma Group is working on development of guidelines for Canada, which will be capable of adaptation for use in other countries around the world.
Project co-ordinator, Nataly Weizblit, and co-Chair, Brenda Galle MD, examine the role of guidelines in advancement of patient care.
As retinoblastoma is so rare, collaborative research is the only was to significantly expand our knowlege of the cancer. Abby White assesses the current situation in retinoblastoma research, and the potential impact of a global research partnership.
Hope lives in central South Africa, and Grace lives in Australia. Both girls have battled bilateral retinoblastoma for most of their lives. Their stories are worlds apart, but both full of light and an optimistic future, thanks to good awareness and rapid referral to medical specialists.
An estimated 70-80% of children with retinoblastoma lose one or both eyes to the cancer. Living with a prosthetic eye can throw up many challenges and concerns. Daphne Archibald, ocularist at Toronto's Princess Margaret Hospital, answers your questions.
Certified Child Life Specialist, Morgan Livingstone, provides advice to help parents effectively support their child through the process of receiving and living happily with an ocular prosthetic.
We with the Canadian Retinoblastoma Society a happy fifth birthday this year. CRbS President, Peggy Gronsdahl looks back at how far the organisation had come since its inception, and forward to exciting projects currently in development.
When retinoblastoma survivor Allison Wadge was just eight years old, she decided to hold a fundraiser with some of her friends, in support of retinoblastoma research. Her front yard beaded jewellery salve was a fantastic success, and her initiative exemplifies the character of a World Rb Citizen.
Chase boredom away on long car journeys to the hospital with these printable road-side scavenger hints.
A selection of your letters from the mail bag
A list of happenings in the global retinoblastoma community.
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