Winter 2008
Winter 2008
Welcome!
The Global Eye.
Welcome
Eye Contact
Art for Eyes Paint Day
Toronto Bluejays Game
David M Bailey Concert
4th Annual Blind Ball
Harry’s Farewell.
Research Matters
Toronto Protocol
Eyes on the World
World Rb Awareness Week
In the Spotlight
Katy's Story
Brady's Story
Focused Care Q&A
Implants..
The Art of Child Life
Going to the Ocularist.
Snap Shot
Honduras.
World Rb Citizen
Timothy Murray MD
Kids Corner
Valentine Fun..
Points of View
Have Your Say.
Diary Dates
What's Happening?
At the end of September, Toronto was played host to the 2nd annual Art for Eyes Paint Day and the first Retinoblastoma Day with Toronto Bluejays. Art work produced at the Paint Day was sold during a live auction at the 4th annual Blind Ball on November 3rd. You can read about these events in Eye Contact,
In Research Matters, find out about the Toronto Protocol, which is currently being assessed in the world’s only inter-continental clinical trial. The multi-centre study challenges rarity by linking centres of excellence across the world to increase the number of participants for a comprehensive clinical trial.
The Toronto Protocol remains In The Spotlight as we meet two children from England and the USA whose sight was saved when their parents pursued the best last chance to avoid enucleation surgery.
Often, the best opportunities for vision- and life-saving cure of retinoblastoma involves international collaboration and teamwork. We meet Dr. Timothy Murray, who has demonstrated the qualities of a World Retinoblastoma Citizen in his humble partnership with doctors across international borders, to bring the best opportunities to his patients.
Keeping our Eyes on the World, we examine the importance of awareness raising among the general public and primary health care community ahead of World Retinoblastoma Awareness Week in May. Taking a quick Snap Shot of retinoblastoma awareness, our viewfinder settles on Honduras, one of the world’s poorest countries. Here, we find out about a simple education program which has achieved earlier diagnosis for children affected by retinoblastoma across the country.
Your questions about implants are answered in Focused Care, and we learn more about The Art of Child Life on a trip to the ocularist to make an artificial eye.
Children will find delicious, crafty Valentine activities in the Kids Corner, and we delve into the mail bag to share your Points of View on guidelines, child life and awareness materials.
There’s much more coming up in the next few months. So make a note of the Diary Dates and join in the approaching events.
We continue to work towards the goal of optimal care for all children with retinoblastoma around the world. In November, Brenda Gallie and I travelled to Kenya for a second time, working with a wonderful team of people across the country and making much progress for children in East Africa with retinoblastoma. Our report from that trip will be completed and published very soon. We have been deeply saddened by the trauma Kenya and her people have been experiencing since December’s disputed elections, and pray that common sense, honesty and lasting peace will prevail.
In spite of these present difficulties, we and our courageous Kenyan friends continue to forge a path forward for the national retinoblastoma strategy, building local capacity and expertise for the children who’s cancer will not wait for peace to return to this beautiful country.
We hope you enjoy this issue of The Global Eye. We love to hear from our readers and share your contributions, so pleas do drop us a line and let us know your thoughts or suggestions.
Thank you very much for your support and interest.
Best wishes.
Chief Executive.
Daisy's Eye Cancer Fund.
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