Spring 2008
The Global Eye.
Welcome
Eye Contact
Jeff Healey Concert
Bowling for Africa
San Francisco Meeting
Research Matters
Mosaicism.
Eyes on the World
China
Rati’s Challenge
In the Spotlight
Abby
Linda
Focused Care Q&A
Pain
The Art of Child Life
Pain Management
Snap Shot
India
World Rb Citizen
Maria Pezzente
Kids Corner
Bugs.and Butterflies
Points of View
Have Your Say
Diary Dates
Upcoming Events
April in New Jersey saw another fundraiser for DECF as the manager and community of Srarbucks In Gillette organised an afternoon of bowling fun, scoring an excellent strike for our Rati’s Challenge program in Kenya.
When you’re going through the mill of treatment, contact with other families can be a source of much support and encouragement. Find out what happened when parents came together earlier this month for the first San Francisco Bay area Rb family group meeting,
The genetics of retinoblastoma can be confusing, especially if your child has unilateral retinoblastoma and no family history of the cancer. In Research Matters, we put mosaic mutations under the microscope, and explore how research at Retinoblastoma Solutions in Toronto is helping to provide answers to families affected by Rb.
All eyes are on China these days as the country prepares for another Olympic summer. We turn our own Eyes on the World to the challenge of caring for children with retinoblastoma across this vast country, which sees more than 1,500 newly affected children each year. As the Olympic Torch heads to Beijing, a very different kind of hope is brewing for children, thanks to the efforts of the retinoblastoma team at the city’s Tongren Hospital.
As Kenya looks to the future following the country’s tumultuous new year, we also turn our gaze on the second Rati’s Challenge Report, and the fervent work taking place in Kenya that will bring hope to hundreds of retinoblastoma affected families across Africa.
Turning the Spotlight on individual stories, we meet Abby and Linda, whose very different experiences with retinoblastoma have become part of a novel teaching tool for schoolchildren learning about poverty and human rights.
Many children affected by retinoblastoma are too young to verbalise what they are feeling, and the possible presence of pain can cause much anxiety for parents. We put your pain related questions to the experts in Focused Care, while the Art of Child Life offers various approaches to non-medicated pain management for children.
Retinoblastoma awareness has been high on the agenda this month, with activities taking place around the world during the 2nd World Rb Awareness Week. We take a Snap Shot of India’s awareness campaign, where audio visual and print resources are being utilised In the effort to reach more than 1billion inhabitants.
About 80% of retinoblastomas are initially picked up by parents as a white glow in the child’s affected eye(s), but lack of awareness frequently leads to delays in seeking medical examination and diagnosis. We introduce you to Maria and her beautiful son, Leo. On a mission to educate parents through the photographic industry, Maria Pezzente is a true example of a World Rb Citizen.
Spring is a time for renewal, of new life and hope. Join us in the Kids Corner for some great fun with bugs and butterflies, and find out how these wonderful creatures can help to transform scary CT and MRI scans into an incredible adventure.
We hope you will enjoy this latest edition of the Global Eye. Please do send us your feedback – we love to hear from our readers and know what is most helpful and interesting to you so that we can make each edition even better than the last.
As we continue to work daily towards a brighter future for children and families affected by Rb around the world, we thank you very much for your support, and wish you a very blessed and joyful summer.
Best wishes.
Chief Executive.
Daisy's Eye Cancer Fund.
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