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Donate | Contact Us |
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Raising Awareness |
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Why is awareness so vital? |
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Retinoblastoma kills children if left untreated. The earlier this cancer is diagnosed, the easier it is to treat, and the higher the chances are for a successful outcome. Almost all children survive retinoblastoma in developed countries, but many lose at least one eye due to delayed diagnosis. In less economically developed countries, very few children survive. Why is this? |
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The Need
Raising Awareness
Awareness is Vital
Taking Action
Awareness Week
Global Rb Strategy
Rati's Challenge
Rb care in Africa
Retinoblastoma Book
World Rb Citizen Award
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The majority of children in developed countries like the USA, UK and Canada are diagnosed when tumours are still contained within the eye, leading to a survival rate of over 96%. This is largely due to: |
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Generally open access to health care systems when parents are concerned for their child’s health and welfare.
Child health visits and eye screening programs, at which retinoblastoma may be identified.
Abundant media coverage of health topics - creating highly health-aware consumers and strong individual self-advocates. |
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The majority of children in developing countries are diagnosed at an advanced stage with untreatable extra-ocular tumours, leading to mortality rates of upto 90%. This is largely due to: |
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Inconsistent and unreliable access to informed health care providers.
Poor or non-existent child health intervention.
Lack of personal funds to access medical assistance.
Endemic lack of access to health care information, leading to an inability among parents to self-advocate and pursue concerns. |
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Awareness among parents and carers in developing countries may be the absolutely crucial difference between a child surviving retinoblastoma or dying from it.
Early diagnosis and referral to doctors experienced in retinoblastoma management is a child's only hope of healthy vision.
The most common early sign of retinoblastoma is a white reflection in the affected eye, which can be easily detected by parents Simple awareness of this can save many lives, and improve chances of vision saving therapy. |
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Taking Action World Awareness Week |
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