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National Artificial Eye Service

In many parts of the world, surgical removal of the eye (enucleation), is the only treatment available for retinoblastoma.  When the tumour is contained fully within the eye, surgery is curative.

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However, in many developing countries, families cannot afford to buy artificial eyes for their children.  Experienced ocularists (makers of artificial eyes) are also scarce in these regions of the world.

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An artificial eye is made of acrylic, shaped like a portion of an eggshell, and painted to match the other eye. It is worn over a ball shaped implant that is permanently inserted at the time of surgery to restore the volume previously occupied by the eye.  An artificial eye is not only used for cosmetic purposes.  If the child does not have an artificial eye, the gap behind the eyelids is likely to shrink.  The socket may become deformed, and lose its ability to open, close and blink properly.  This can result in further complications, and pain for the child.  Poor access to artificial eyes, lack of understanding about retinoblastoma treatment, and traditional beliefs among some communities causes often unbearable emotional distress.  Many families refuse curative surgery due to the stigma associated with removal of an eye. We are developing plans for an artificial eye service in Kenya, with the assistance of a talented ocularist in India.  Using low-tech facilities and low-cost materials, good quality eyes can be made at a cost of less than US$40 each.  Initially, eyes will be produced in India in large quantity.  We will later facilitate a training program and start up for ocularists in Nairobi, to be led by our Indian ocularist.  This will enable good eyes to be produced at low cost in Kenya, accurately matching colour of the remaining eye, and enabling fitting and replacement of eyes as the child grows. We will also produce a number of print and audio-visual resources relating to artificial eyes.  These will explain the need for and process of eye removal.  They will also show that children remain very special, talented, intelligent and capable, even in the absence of one or both eyes.  These resources will be available through the national artificial eye service, which will actively work to challenge public misconceptions and stigma associated with eye removal.

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